E-ISSN 1309-4866
Research Article
Validation and Reliability Study of Turkish Version of Stigma Scale of Epilepsy
1 Clinic of Neurology, Şişli Hamidiye Etfal Training and Research Hospital, İstanbul, Turkey  
2 Clinic of Neurology, Yedikule Chest Diseases Training and Research Hospital, İstanbul, Turkey  
Arch Neuropsychiatry ; : -
DOI: 10.5152/npa.2016.12673
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Key Words: Stigma, epilepsy, prejudice
Abstract

Introduction: We aimed to validate Turkish version of Stigma Scale of Epilepsy (SSE) (from Brazil) and present results of its. 

 

Method: SSE was completed by 33 patients with epilepsy (PWE), 25 patients’ family members, and 23 people from the community. Subjects were interviewed on an individual basis; a physician read the questions and the subjects wrote the answers in a sheet.  The form was the same for all subjects. In addition, the Beck Depression Inventory (BDI), Hamilton Anxiety Inventory (HAI), Short Form-36 (SF-36) was completed by the subjects.

 

Results: We interviewed 81 subjects. The internal consistency of SSE showed α Cronbah’s coefficient 0.785 for the PWE, 0.733 for the family members and 0.798 for the people in community.  The mean scores of SSE were 57 for patients, 66 for family members and 65 for the community where a score of 0 would suggest no stigma, and 100 maximum stigma. The SSE score of patients, family members and the community who believe that patients with epilepsy are stigmatized or rejected is higher than the SSE scores of who don’t believe it. Although there were strong correlation high SSE scores and poor functionality and BDI; there wasn’t any correlation with SSE and HAI, age of epilepsy onset, time of epilepsy, education and social class.

 

Conclusion: The SSE has satisfactory content validity and high internal consistency. It allows the quantification of the real perception of the epilepsy associated stigma. Prejudice and discrimination are often worse than the seizures themselves in terms of impact on daily life of people with epilepsy and their family. The understanding of the aspect of epilepsy is important to reduce the burden of epilepsy, and the SSE can be used for studies, such as cross cultural, media and social campaign in minimizing the negative influences of stigma.

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